A 10-year-old girl from the Bronx is celebrating her 1-year 'Heart-a-versary' thanks to the team at NYU Langone.
A 10-year-old girl from the Bronx is celebrating her 1-year "Heart-a-versary." Lauren Glassberg has the story.Delaney "Chi Chi" Soto got the best birthday gift last year when she received a much-needed heart transplant on January 31, 2022, at Hassenfeld Children's Hospital at NYU Langone.
"She got an early birthday gift," says mom, Katherin Rivera. "It's been a very long road, needless to say."Chi Chi was diagnosed at 20 weeks in utero with Noonan syndrome, a disorder that can cause congenital heart defects in addition to preventing normal development in various parts of the body. Chi Chi had five open heart surgeries and had experienced end-stage heart failure before the procedure last year. She went into cardiac arrest in 2019 and had to have an implantable cardioverter defibrillator installed. Despite the implant, she went into cardiac arrest again in 2021 and she was placed on ECMO. Her mother has had to perform CPR on her daughter before her heart could be shocked back into rhythm.
Chi Chi spent the next four weeks in the CCVCU awaiting a heart. The child life specialists at NYU Langone kept her active during her stay with a daily schedule including school, therapy, and playtime.
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