“I wasn’t expecting to be in a situation like this for another 50 or 60 years, where I lose this much functionality and require full-time care. Chronic illness takes away so many of life’s joys, both big and small,” Courtney Garvin said in an email.
in the Department of Language Science at UC Irvine. When he is not working, he is a full-time caregiver for Garvin and limits his social interactions to avoid getting her reinfected.
“The consistency of the experience of going to doctor after doctor, seeking help, and being disbelieved and condescended to is really surprising to me,” Garvin said. “It points to the underlying systemic issue in our culture where we see chronic illness as a moral failing.” “It’s grim to think of how many people’s lives might be changed for the worse because we didn’t understand the long-term effects well enough to factor them into considerations about preventative safety measures,” Mayer said.
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