Lily Brasch aims to spread a message of positivity, in part through her appearance at New York Fashion Week last month.
Abi Brasch remembers her childhood through the nightly conversations she shared with her roommate and sister, Lily. In between giggles, Lily Brasch would talk about her dreams, including the one where she put on a runway show with people of all different physical abilities, accompanied by Taylor Swift playing in the background.
"Hundreds of people are literally telling you what they predict for your life, telling you that you can't do things and trying to paint this picture in your mind that the way you were born is flawed ... but I took a hold of that, I took charge and here I am today advocating and spreading the message that you can do whatever you want," she shares.Lily Brasch / Hilary PhelpsLily Brasch grew up modern Orthodox Jewish in the Chicago area.
Lily Brasch remembers nights after she was diagnosed when she lay in the hospital or in bed at home searching on the computer"person with muscular dystrophy in the fashion industry." She would spend hours searching for anything related to disability, but everything that would come up was"just so sad."
The only problem was that the show was on a Friday night and Lily Brasch observes Shabbat. But working with her publicist and her sisters, Abi and Noa, they timed it out so Lily Brasch would walk before the holiday started at sundown. “I think it’s the moments like that where you’re pushed to see your strongest values. We thought back to my parents, who weren’t there. It’s Lily, Noa and I, and we’re young adults figuring out our Judaism, figuring out our lives and our values and everything and all three of us were talking about how the most sacred part of our Jewish life has always been Shabbat,” Abi Brasch adds."I felt like a mama bear," Phelps says of her conversation with the NYFW organizers.
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