After losing husband to rare neurological disease, a widow tries to raise awareness

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After losing husband to rare neurological disease, a widow tries to raise awareness
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In 2004, things unfortunately took a drastic turn when Sam, Feldman's husband, was unexpectedly diagnosed with Progressive Supranuclear Palsy (PSP).

Debbie Feldman lived the American dream for most of her adult years -- she married her best friend , succeeded in her career working as an accountant and raised their two sons in the highly desirable suburban town of Avon, Connecticut.

His body began to succumb to the neurological disease, though ironically, his thoughts remained sharp as a tack, even up until his final days. Sam's whit was fierce and his laughter became infectious -- a memory the family cherishes dearly to this day.“At the end of my husband’s life, while he was in hospice, I realized that life became simple,” Feldman told ABC News. “It wasn’t about our possessions, but rather, our connections.

“I created this line of jewelry to give words to the person who has trouble expressing themselves,” Feldman said. “Each piece of jewelry is linked to a personal sentiment. I want the jewelry to connect people with heartfelt emotions.” Statistics show about three to six in every 100,000 people worldwide have the disease, according to the National Institute of Neurological Disorders and Stroke .Researchers, however, are continuing to investigate why brain cells degenerate in those who suffer from the disease, according to Dr. Jeff Bronstein.

"It can be very hard to make the diagnosis very early on for that reason," Bronstein said."There is no blood test. We treat the symptoms specifically. Since the disease is very variable, you need to kind of customize therapy for each person having the problems."

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