'Because of the skills I've learned through my diagnosis, I can show up for my daughter.'
. My main symptoms include joint pain, fatigue, neuropathy, anemia, and dry eyes and mouth. Before I got treatment, it became difficult to walk for more than short spurts and do things that used to come easily to me, whether that was dancing or opening a jar. I'm a physical person, and could feel my UCTD draining my verve away. Luckily, after multiple tests and connecting with a good rheumatologist, I got my symptoms to a more controlled place, though they're not gone.
Even with the pain and fatigue along for the ride, I am so much more patient with myself and others than I was in the days when I never had to think about how my body is functioning. My diagnosis forced me to choose between morning my old life and living my current life fully in a way that respected my situation. I could be tired and shut down, or be tired with a purpose. I choose purpose and accepted my new limitations.
My almost three-year-old daughter is the most energetic person I know. She is demanding, and magnificent, and a joy to witness. Her capacity for play and exploration is boundless. And because of the skills I've learned through my diagnosis, and enjoy her, even when I am not feeling my best. She can see me contented even when things are far from ideal, and I'm grateful that I can show her there is strength in that.
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