Coronavirus is challenging for everyone right now, but there is an extra level of challenge for those of us, like me, who are immunocompromised. realwomenrealstories IBD
that leaves me with a compromised immune system. In some ways, I feel like I actually have a leg up on people because for more than a decade, I've been in the habit of washing my hands frequently, taking my shoes off when I enter my home, and changing my clothes to prevent illness. When you've lived as an immunocompromised person for so many years, it becomes part of your daily life. But I still have to be so careful, which isn't always easy.
In general, I keep a low profile. I work from home, and I often find that I don't leave the house. So nothing really changes for me in times of social distancing. But one thing I've learned for sure—when you are immunocompromised, you need to protect yourself, stay on your biologic therapies or other medicine, and don't panic.My journey with IBD started two months after college graduation.
I remember feeling absolutely devastated. I was now taking 22 pills a day, including 60 mg of prednisone, which made me irritable and gave me puffy cheeks. My bones hurt and I felt like a 90-year-old woman. And to add to my sadness, my college boyfriend who lived 1-1/2 hours away and had been part of my future plans, never visited me in the hospital and broke up with me over the phone the day I got home from the hospital.
This is not to say that I haven't had difficulties. The issue with IBD is that you can wake up and feel fantastic in the morning and be in the hospital that night for an issue. One day in particular that I remember was in 2014. I had anchored four hours of news that morning, ran 9 miles to train for a half marathon and drove to St. Louis with my dog to spend the weekend with my boyfriend . After a full day of feeling great, I ended up getting hospitalized that night with a bowel obstruction.
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