Lisa Machado: Why can't doctors talk seriously about fatigue without blaming it on stress, or the kids, or alcohol, or your diet, or….? — via healthing_ca Iamlisamachado patientvoices fatigue
. These patients know well the uphill climb of convincing doctors that fatigue is a thing — a full-on, life-affecting, frustrating, depression-inducing, still-tired-no-matter-how-much-you-sleep thing.But why is that? When we see a doctor about a headache, we generally don’t get told that everyone gets headaches , that we should man-up and soldier on. There is usually some kind of discussion about symptoms, maybe treatment suggestions or tests booked.
There’s no question that fatigue can be a hard thing to diagnose and treat, particularly in people who have health conditions and are on medication — no one ever seems to know if the exhaustion is caused by the condition or the meds, and even if the reason could be nailed down, besides perhaps adjusting the treatment, there’s often not much that can be done about it. It becomes a bit of a suck-it-up-buttercup situation. Lousy.
The other thing about fatigue is that it’s frustratingly nebulous. It’s not a tangible lump, bump or pain that can be felt, scanned or removed. It can’t be detected with a blood test. It’s invisible to the person who sees you for two seconds in their office, tapping their foot and checking their phone as you rattle off symptoms. Yet, for people experiencing fatigue, it’s right there with them, all-consuming, ever-present cement shoes that make it excruciatingly difficult to have quality of life.
But what if we opened our minds to the fact that, though we can’t see or touch it, similar to a headache, fatigue is a real thing with massive implications. And though we may not be able to treat it and make it go away, alternatively, there is empathy, compassion, and acknowledgment, all of which would go a long way in supporting patients, lessening the sense of isolation and frustration that comes with not being heard and ultimately, improving the patient experience.
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