In 2017, Farah Mirizadeh was diagnosed with Spinal Muscular Atrophy (SMA) and given maybe seven to eight months to live, according to her parents.
Her father, Aykhan Mirizadeh, and mother, Sabina Barkhu, spoke to KIRO 7 about their experience raising a child with SMA.
Researchers at Johns Hopkins University say that SMA may not present itself as a condition until a little later in life. Farah’s parents say she is taking the first-ever at-home treatment for SMA called Evrysdi, which was only just approved for use in children in August 2020, according to the FDA.Aykhan says the medication has manifested everything she’s noticed for years.
“She’s still with us, she’s thriving wonderfully. There is hope. You just have to find the right people, the right doctors, the right support system, and hold on to that glimmer of hope because we did.”
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