Opinion: My father's experience with frontotemporal dementia makes me grieve for Bruce Willis' family | CNN

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Opinion: My father's experience with frontotemporal dementia makes me grieve for Bruce Willis' family | CNN
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'With the tragic announcement of a high-profile diagnosis like Willis’, this nightmarish disease is being focused on in a way it never has been before... It’s too late for my beloved father.' | Opinion

Like many others, I recently learned of actor Bruce Willis’ frontotemporal dementia diagnosis after his family issued a statement that circulated in the media. Unlike many others, I was clearing leftovers from my father’s memorial service when I read the news. I had buried my father, Behrooz, earlier in the week. The previous Saturday night in my childhood home, he had died with his hand in mine after losing a long battle with the very same disease. He was 64.

So we noticed his personality changes early enough that he never gambled away his life savings, lost his home, fell prey to a predatory scam, got into a dangerous accident, got fired from a job or put the lives of his family in danger – all things that can happen to people with FTD early on as the parts of the brain responsible for judgment atrophy. Many families aren’t so lucky.

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