Some health care providers worry that patients won't know how to protect their own data
Hospital executives, with some support in Congress, are lobbying for more regulation to protect health information from unscrupulous data mongers. But HHS isAs federal rule-makers grapple with making patient data more easily shareable, some health leaders fear that their actions could lead to a proliferation of apps selling or exploiting medical data.
Patients may not understand the boundaries of HIPAA, said Leslie Krigstein, a vice president of the College of Healthcare Information Management Executives. CHIME backs a section of the Lower Health Care Costs Acts of 2019 calling for a GAO report on privacy protections for health data, and has urged Congress to ensure that health data shared with third-party apps is secure and private.Get the latest on the health care fight, every weekday morning — in your inbox.
Patient data advocates generally agree and caution against too much paternalistic oversight that could delay data access. Patients regularly download apps outside of health care, and they can be trusted to read and agree to privacy policies on their own, they say. One Senate bill could ease some pressure on providers who feel an ethical obligation to ensure that patients aren't sharing their data irresponsibly. Last month Sens. Amy Klobuchar and Lisa Murkowski introduced the Protecting Personal Health Data Act which would require HHS to establish regulations for consumer apps and genetic testing kits to protect patient data privacy and security.
ONC's proposal, which clarifies when groups are allowed to restrict data sharing, affords the patient "agency over their own health information that is often absent in health care,” ONC head Donald Rucker said in written
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