A St. Charles family is hoping their young daughter's story will encourage people to get screened to become a stem cell or bone marrow donor for patients battling cancer and other life-threatening conditions.
Matt and Marina Robken's 3-year-old daughter Arlie has spent the last three months in and out of hospitals and treatment facilities after she was diagnosed with leukemia on March 17.
Once a healthy, energetic and athletic young girl who always was smiling, Arlie is now in a lot of pain and her medication makes it hard for her to walk. The side effects from her medication include high heart rate and blood pressure, difficulty breathing, eye pressure that causes excruciating pain, vomiting, hair loss, nerve pain and trouble healing.
Leukemia is the most common cancer in children, and typical survival rates are very high, Hyani said. But in certain cases, such as Arlie's when there is lack of response to chemotherapy, then doctors must resort to a bone-marrow transplant."Arlie is a cute, strong young girl," Hyani said."She's quite remarkable and has really wonderful parents that have been supportive and very proactive in taking on this task of spreading awareness.
"There is definitely a need for more awareness of the need for donors and registrants," Hyani said."Of course, there is still a need for Caucasian donors, but more so in nonwhite ethnicities." Marina said her family has received a lot of support from the community and from those following Arlie's story on social media.
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