It was a year before McKenna's Crohn's symptoms were diagnosed -- and she counts herself lucky it didn't take longer.
, another form of inflammatory bowel disease . He rarely talked about it when I was younger -- I don’t think I even heard the words “ulcerative colitis” or “inflammatory bowel disease” until I started having symptoms myself, but once I did, he opened up and became my advocate.
Over the years as I built my IBD tribe -- which now also includes my fiancé, who has ulcerative colitis -- I’ve become empowered to advocate for people with IBD. I started volunteering with the Crohn’s & Colitis Foundation when I was a teenager. When I graduated from college, I joined the staff that manages Camp Oasis, the foundation’s residential summer camp for kids with IBD. I also frequently speak at fundraising events.
I have a fairly severe case of Crohn’s, and I’ve already had to have two surgeries: one that entailed removing about 10 inches of my small intestine and another to create a permanent ostomy, which allows stool to exit my body though an opening on my stomach and into an external ostomy bag.Even the strongest IBD medications on the market don’t work for everyone. And sometimes a drug that initially works for you stops working.
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