A study in the Journal of the American Medical Association found that around one in four patients with diabetes say they ration the medicine due to cost
Nicole Smith-Holt demonstrates for affordable insulin, holding a vial of her son’s ashes. Photo: John Tlumacki/Globe Staff/Boston Globe via Getty Images Twenty-one-year-old Jesimya David Scherer-Radcliff might still be alive if he could have afforded his insulin. KARE 11 reported on Sunday that the Minnesota man had been rationing the insulin he needed to treat his diabetes. “The cost of insulin is ridiculous,” Jesmiya’s father, David Radcliff, told the news station.
Scherer-Radcliff’s death is not an isolated event. Annual insulin costs doubled between 2012 and 2016, a fact with a death toll attached to it. There’s no single force propelling insulin prices to newly dangerous heights, but the problem is exacerbated by the flaws of America’s heavily-privatized health care system. A lengthy piece in the Washington Post magazine suggested that pharmaceutical companies and pharmacy benefit managers like CVS Health share the blame.
As insulin prices rise, patients go without. One study in the Journal of the American Medical Association, cited by the Guardian, found that around one in four patients with diabetes say they ration the medicine due to cost, but pharmaceutical companies show little interest in slashing prices back down to humane levels. Meanwhile, rationing can have dangerous consequences for patients who depend on insulin to survive.
Scherer-Radcliff’s funeral was attended by Nicole Smith-Holt. According to the Post, her son, Alec, died of ketoacidosis less than a month after he aged out of his parents’ insurance plan. “My son and Jesy, they were murdered. They were killed by big Pharma. The cause of death should actually be on their death certificates, corporate greed,” she told KARE 11. “I want justice for all of their deaths.
Bills like the Alec Smith Emergency Insulin Act can help low-income patients. But a universal solution to the problem will take federal action, and that might not be forthcoming as long as Republicans control the Senate and the White House. Some federal lawmakers, however, have recently demonstrated interest in the problem. The House Oversight Committee and the Senate Finance Committee held hearings in January on insulin prices; in April, so did the House Committee on Energy and Commerce.
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