Caring for medically fragile children in their own homes
Thirteen-year-old Collin Jackowski usually lights up when he hears music.
It turned out to be an urgent medical situation for Jackowski, who suffers from a severe form of cerebral palsy known as spastic quadriplegia . Trail’s ability to spot the situation early on — due to both her training and experience — may just have saved Collin’s life. “I think it was so easy, when we had other providers, to feel marginalized,” says Collin’s mom, Julie Jackowski.
Coastal Kids got its start in 2005 after Margy Mayfield — who spent more than two decades as a pediatric nurse — decided to find a better way to take care of children living with serous illnesses. Her experience taught her that these kids simply wanted to be at home — not at a hospital. So she co-founded what is reportedly California’s only nonprofit pediatric home health care agency.
Coastal Kids came into the Jackowskis’ lives at the right time, as Collin’s older brother Ryan — who had been a huge help in providing necessary home care — enlisted in the Navy about a year ago.Collin Jackowski enjoys a visit to the Rose Garden in San Jose with his parents Matt and Julie Jackowski, and their registered nurse from Coastal Kids, Heather Trail.
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